Andai itu takdirnya - Part 4

22nd January 2011

Another appointment with prof Lee. We were expecting good news from CT Scan and blood test. Prof Lee informed us that the result is in line with biopsy result..and her blood test shows that her hb is still low(below 10). Prof Lee also has reviewed the video and confirmed that it is crohn disease. He also asked us to get the slides from DEMC for second review at UMSC.

He has to start medication for Kakak. Kakak will be given high dose of prednisolone, mesalazine and supp for her low hb. He advised us to maintain a file for Kakak's medical report. Kakak is very disciplined with her medication which I will not have to worry and remind her every day. Kakak is very curious on what she has been prescribed and did some search on the drugs. She is full aware of the side effects and had prepared herself . She is a strong girl..

We have passed the slides to Prof Lee for second review and the result confirmed that it is Ulcerative Collitis not Crohn. However, according to Prof Lee, kakak still has to go thru the same medication. If it is crohn, then he has to add another medicine.

We informed Prof Lee that we are going to perform umrah in March. He advised us not to take kakak for umrah as she is on high dose of steroid and her immune system is low. Exposing her to crowds might expose her to virus and gems. After having some taughts, doa after doa and advise from friends, we decided to take her for umrah. If she cannot go, then all of us will not go.
Afterall, we are going to Rumah Allah..Insyaallah, Allah akan melindungi kami terutama kakak.

Kakak was on her last 2 weeks of prednisolone intake during our umrah. Alhamdulillah she was alright and only got some light flu few days before we came back to Malaysia.

Kakak went thru her second round of scope in June at UMSC. Alhamdulillah the result shows that all the inflammation are gone but the biopsy still shows that the 'thing' is still there. Prof Lee advise us to continue her medication for at least 4-5years. This is to prevent from recurrance. If she got another attack, means kakak has to go thru the same round of medication again (high dose steroid). Prof Lee actually was so amazed on her progress which he said that this is the first time he had a patient that can recover so fast. Praised to Allah..Alhamdulillah, thank you Allah..Allah has granted our doa..

Now we have to keep up our schedule with Ayah's and Kakak's follow up appointment.